Miller Family

Miller Family

Friday, November 6, 2009

Pump update

Benson has been wearing his pump for four days and is amazing with it. We call it his "buddy". He is so mature about it. I have been telling my family that Heavenly Father sent me the right kid for the disease. He is so patient with me while I play with his pump and give him insulin doses (called boluses). He doesn't touch his pump nor does he pull on the 23 inch tube that connects from his bum to the pump. My nurse at Children's has been taking extra good care of us. You get some nice perks when you kid is a rare case. She gave us a harness that holds his pump on his chest. We mostly use that although my Mom and I are going to buy some cargo pants during Thanksgiving and sew button holes through the pockets so his pump can sit in his pocket. I think that will be the most comfortable way to wear it.

The first day his numbers were almost perfect. He went into Hypoglycemia around 5 am and so they changed our basal rates and ever since our numbers have been horrible. He has mostly been in the 300's for the past two days. I talked to the nurse today and she was pretty worried about him. I changed his infusion site (I lay Benson face down on my legs and stick a pretty long needle into his bum which gets the tube inside his body) and then we changed his rates again. We have been mostly in the 200's today so I guess we've made improvements. The nurse thought for sure he would have heavy ketones (not a good thing) so I panicked a little until I checked him and found no traces of ketones. I credit that to all the prayers coming from our family and friends for Benson this week. It doesn't make sense for him to have such bad numbers and not have any ketones.

The Lord continues to bless us. It's almost been a year since his diagnosis and we have had countless miracles and blessings that have strengthened our family and testimonies (including experiences with Reece and his respiratory struggles). This has been a great experience for us. We have seen the Lords tender mercies countless times and our testimonies have been strengthened in many ways. One of the biggest lessons I have learned is that we can't control what we are dealt, but we can always control our attitudes. I believe that with each trial we are given, blessings are given to exceed it. That is why I am thankful to have the gospel in my life. I can see those blessings instead of seeing the hardship.

2 comments:

Traci said...

You guys have been in our prayers this week - we'll keep it up! I hope things will get more stable soon! You're amazing!

Brandi said...

WOW Juliann, you have a great attitude in a hard situation...I really admire you. And Benson, what an angel! I still can remember the first time I saw you "poke" him and he didn't even flinch! Meanwhile back here in Moscow, Kennedy calls our neighbor Juliann constantly...love it.