Miller Family
Saturday, October 31, 2009
Positives to everything...
Friday, October 30, 2009
PUMP
Thursday, October 29, 2009
Benson's trial pump
Here are some facts about the pump:
* Benson will wear it 24/7. The insertion site is in his bum. He can disconnect the tube to take baths and swim.
* It will help us better control his blood sugar because it acts more like a normal pancreas. It gives insulin every hour according to his needs (we will pre-set the amounts which very according to his hormones, time of day, etc). I will tell the pump how many carbs Benson ate and it will disperse insulin.
* NO more shots!
* I still have to check his blood sugar on his finger. Our monitor will check his BG but it's not totally accurate so I will continue checking him.
* It is the same size as a pager.
* I will change his insertion site every 3 days. I put a needle that has a tube around it into his bum and then pull the needle out so the tube stays in his bum. This is how the insulin gets into his body.
We are scheduled to get the pump on November 10th (our insurance is being SLOW).
Good news: I have had to fight a lot of battles to get the right test strips and insulin lately. The State of Washington and Blue Cross wanted to give us the cheapest test strips that have a poor accuracy rate and I found out today that I won the battle with Blue Cross and the State of Washington and now get the test strips I want and get a months supply at a time (every since his diagnosis I have had to go to the pharmacy every ten days to get more strips).
P.s. I also won the battle with our doctors over our insulin! I have learned that persistence and having all your ducks lined up pays off!
Benson posing for me while I take a picture of his pump. Notice his pants are low rising. It's pretty heavy for the little guy so my Mom and I are coming up with some creative ideas to make it easier for him to carry.I asked him to turn around so I could see his face. Isn't he so cute!
Reece has been so excited to make his own jack-o-lantern pumpkin. I put the boys in the stroller and walked to QFC and had Reece pick out a big pumpkin and Benson pick out a small one (I knew they would need a distraction while Spencer carved the big one!). So during Daddy's study break Spencer carved a pumpkin, I took pictures and fed them candy corn, and the boys painted.
Monday, October 26, 2009
Are you sleeping, are you sleeping....
Preschool Halloween party
Boys ready to run in the rain to the Halloween party.
We go on trial tomorrow...
Life at the Miller home has been relaxing. I refuse to take the kids to church, winco, or pretty much anywhere outside our apartment complex until they get the swine flu vaccination. Spencer thinks I'm ridiculous but I am super paranoid about it. I told him last week I wasn't going to take them anywhere and I ended up going to the pharmacy at least 7-8 times and then to the doctors office twice (they weren't allowed to touch anything and had to stay in our stroller). Serves me right for jinxing myself.
Reece got tested for allergies again. He is severely allergic to milk and peanuts, and also grass and dogs. I'm glad we got him tested because it explains why his asthma was so bad this spring (grass pollinates in spring)
Monday, October 5, 2009
Funnies for the day...
Reece: I'm good. I'm just reading and singing in here.
Dad: Well, I love you tons.
Reece: I love you tons too Dad. Dad, I didn't give you loves and kisses earlier.
(Dad gives Reece a love and Reece gives him a kiss)
Reece: Dad, you have whiskers on your cheek like Michael Finnegan
(Reece talking to my Mom (blow) on the phone)
Blow: Did you get poked in the hospital?
Reece: Yes, and I cried.
Blow: I got poked too when I went to the hospital.
Reece: Oh and did your band aid fall off and did your owies go away?
(Reece decided when he took a bath last night and his band aid fell off and the blood on his arm from the IV washed away that his owies washed away as well!)
Benson is a serious mama's boy. His latest attempt to become the biggest mama's boy is to put his arm around my neck and play with my hair and rub my neck/ear. He no longer will let me put my arm around him, he must put his around me! Precious!
Saturday, October 3, 2009
Another fun adventure...
Monday: Reece started joy-school!
Tuesday: Cleaned the house, babysat for a friend, went to a Relief Society activity, and Spencer's bike was stolen. I felt terrible for him. He spent the summer fixing it up for the school year. It's his form of transportation to and from school.
Wednesday: Picked my Dad and Nicole up at the airport, went to the Space Needle, enjoyed a delicious lunch at Mc Donald's (Reece's pick), went to the Museum of Flight Museum, came home and had a quick dinner, and then went to WICKED!! It was indeed awesome. Elphaba was played by the same girl who was the original Cosette from Les Mes on Broadway. She has one of the best voices I have ever heard. We came home after the play and within 15 minutes Reece was having croup symptoms and was struggling to breath. We got him under control but ended up in the ER. I stayed with him for 3 hours and then we were sent home (he was WIRED from all the steroids).
Thursday: Woke up early to take my Dad and Nicole to the airport and lost my phone in the process. By about 11:00am both kids were crying (Reece because he couldn't breath and Benson because he wanted to stretch his mothers limit) and so I used a neighbors phone, called the doctors office and they got us right in. Luckily my friend Traci (our friend who we've trained for Bensons diabetes) was home and so I dropped Benson off and ran to the doctors office. Our pediatrician sent us to the ER because Reece needed some serious help. At this point I was exhausted, running on 3 hours of sleep, no phone or contact with anyone, and Spencer was stuck at school with no way to get home nor did he get my messages because he didn't have reception or Internet access.
On our way to the ER from the Dr's office Reece stopped coughing so I decided we could stretch out our time before going to the hospital. We got some food, tried to rest, and within a couple hours we were back at the ER. At this point we were a little to late. I had waited to long to take him and so he was experiencing an asthma attack. They admitted him and Spencer stayed the night with him.
Friday: I started out the day on the 6th floor of Children's at Benson's endocrinologist appointment. They gave us great news. Benson will start the process to get a pump!! We also found out why his numbers have been so high (our insulin is to old and has lost it's potency). His A1C was good indicating his diabetes is under control and he is doing great! Yeah, relief, I can breathe! It will take about 6-7 weeks to get his pump but it will make life a little easier. Here is a picture of the pump pack I am getting Benson. He will wear it 24/7. Isn't it so cute!

After his appointment we went downstairs to Reece's room. Spencer took Benson and I stayed with Reece. Reece was so sweet, Benson was on his bed and before he left Reece reached over and gave him a kiss good-bye. After they left Reece wanted to sit on my lap. He had to use the bathroom but was wearing a diaper and so I told him to just go in his diaper. He followed orders and the unfortunate thing happened--it leaked all over my legs. So I spent the rest of the day smelling like pee!
Some of the funnies from the hospital:
*Reece has different names for the nurses: thirsty nurse brings him juice, Emily checks his breathing, and the movie nurse brings us movies. He kept saying "I want Dr.Daddy, he's the best"! He also told the Pediatrician that the "Children's Hospitabable doctors are very nice." He has figured out at an early age that hospital food "isn't very good mom".
Spencer came to visit after school giving me a break to get some food. We are in "isolation" because Reece has a viral infection and so I'm not allowed into the family snack room. Anyway, my good friend Lisa who is also in the hospital met me in the cafeteria with a dog game for Reece. It was fun talking to Lisa. She's awesome and it was kind of fun having a friend in the hospital. She's a trooper and has the best attitude about life. Reece LOVED the dog game and stayed up until 11:00pm playing with his dogs! Thanks Lisa!
Saturday: it's 9:45am and Reece is still asleep. We will be discharged this afternoon and will spend the day watching football and finding a bike for Spencer so he can get to school on Monday.
What a great week. It's humerus looking back at all the eventful adventures that took place. This is life and we love it!
OH, I forgot to add that I had to take "stupid mommy" lessons about asthma because I waited to long to bring him to the ER. They kept saying, "I'm sure you know this but....." and "at this point you need to bring him straight to the ER". Ok, I get the point. We reached our deductible a long time ago--no problem!